The central piece of the event is Niel, living to survive, a documentary that tells the story of Niel, a four-year-old boy who was diagnosed with Propionic Acidemia just six days after birth. This rare disease profoundly affects his daily life and that of his family.
The premiere will take place on Friday, February 27 at 7 PM at the Atzavara Hotel & Spa in Santa Susanna. All proceeds from ticket sales and donations will be entirely allocated to Sant Joan de Déu Hospital for ongoing research into the condition.
The documentary aims to explain how the family learns to live with the disease, showing the adaptation processes they undergo and the constant search for a possible normality.
In addition to the family perspective, the audiovisual production also offers the perspective of the doctors who accompany Niel throughout his illness. This section provides a scientific view on the complexity of Propionic Acidemia and the challenges involved in its treatment and research.
